Friday, October 5, 2007

Late Post!

Took me a while to log back into blogger as couldnt remember my log in details! Here is what I wrote earlier:

I was going to write every daybut too tired to think some nights plus I've been to bed late a few times this week i.e. not in bed before 11pm. I try to aim to be in bed by 10:30 at the latest.I do see an improvement in the mornings when I do this. I felt ok at work today apart from around 2pm where I could barely stop myself from crashing out at my desk! However when I sat down I realised I didnt have the energy to move again! Still not as bad as last week when I ended up lying on my floor while trying to pack. Couldnt even really compute in my brain what I needed to pack. Its funny how physically I can be extremely tired but mentally really alert sometimes. Like earlier this evening. I think my brain needs more stimulation but my body is demanding rest. I totally forgot I saw my doctor this morning. You wouldnt believe how forgetfull I become! Sometimes someone asks me to do something and two minutes later I've forgotten so it doesn't get done! Faces are the worst, if I meet someone for the first time in the morning for example I wont be able to recognise them in the afternoon. This happened all the time on placement, I found it hard to know who the people talking to me were! I think thats what I find the hardest in some ways, the mental disintigration. Its frightening and certainly can increase stress levels! I get in trouble in my personnal relationships for example i may tell someone I will do something for them and then fail to remember to do it. Or I more often I misconstrue a situation as I only remember half the conversation that previously took place. I understand how terrifying it must be when people start losing their memory with age. I've gone off on a tangent, i was just going to write about today and how rubbish I felt. Now I've started writing its like a floodgate opening. For the first time in 5 years of being invisible i feel like I have a voice. A small voice but its a start.


Tuesday, October 2, 2007

Yesterdays Diary Entry

Busy weekend - 2 late nights (1am and 3am) up at 8:30am with some walking Friday and Sunday. V.tired today, nodding off at work real struggle to stay awake sitting in front of computer. This was about 2pm. When I got up I felt unrested and very tired like I could burst into tears or shout @ someone @ the slightest provacation. Felt better by the time I got to work thankfully autopilot on route now. Stalled twice as I do when im tired. Drive home feeling rather spaced think reaction times if required would be rather poor! Starving when got home, had dinner and shower, chatted on phone and watched t.v., still feeling of pervading tiredness all evening as well. Could sleep @ any point of the day anywhere i.e. on floor, @ desk if given the chance. Sleeping from 11pm til 7am but feels like 3 hours. Can just about keep going in a job where all I do is sit at a computer all day and look @ data! Fantasize about a lie in every week.

First Post

Have decided to keep a web log to document my life with M.E. Just so that people get the idea that mild to moderate M.E. isnt a mild condition (!!)  and understand the impact that it has. Am planning to keep a diary so I can track my symptoms, so I'll be posting up my semi-coherent ramblings up soon!